Never a Dull Moment
May 21st, 2010A long, long time since I posted. So much has happened since I was here last. Where to begin.
As you can probably tell by my last post, we lost a very good friend of our family. He was only 29 and lost his battle with cancer. He was such a talented artist and a phenomenal skateboarder and the world is a little less bright without him in it. Unfortunately, his mother was diagnosed with multiple melanoma about 4 years ago and is fighting a hard battle of her own. Since Nathan’s death, she herself is failing quickly and there are no more treatments available to her. Their family has had a very difficult time. I am being as supportive as I can, but we live very far apart so I can only do so much. Too many losses.
On a more positive note, the Olympics were fantastic and seem like 10 lifetimes ago! I never did get all my pictures posted here, but they are here if you want to check them out.
March was spent just recuperating and getting back to work. We had severe cases of post Olympic depression syndrome…but we managed okay. Plus – Donna’s caregiver May hurt her back moving Donna on Feb 10, so we were without a caregiver, which was extremely difficult. I was housebound for a long time and couldn’t get as much work done as was necessary to keep us on top of things.
March 30 Donna had to get a new feeding tube, which was supposed to be simple. However, it didn’t turn out to be that way. Firstly, they didn’t give her any type of analgesia or anesthesia to pull out the tube, which is like pulling a giant mushroom through a hole the size of a pencil eraser. Supposedly it collapses on the way out, but as far as I could see, it didn’t and Donna suffered excruciating pain. The doc did give her some Morphine after the fact, but by this time she was traumatized to say the least. By April 2 she still couldn’t use the tube because of the pain in her stomach, which is not supposed to happen. I called the doctor who said to give it until Saturday and then to go Emergency if it wasn’t better. In the meantime, the only nutrition she was getting was from me feeding her, and since her stomach wasn’t used to solid food, that wasn’t great either. Saturday, still lots of pain, so we went to Emergency and spent 7 hours waiting there while they decided they couldn’t do anything until Tuesday as it was the Easter weekend and sent us home. By Tuesday I was out of my mind and called the doctor first thing. He then decided maybe he should check the position of the tube and got Donna in on Thursday to check it out. Sure enough, just as I HAD suspected, it was in her abdominal wall instead of in her stomach, so it had to be removed and replaced with a new one. This time however, they gave her a ton of anesthesia so she was spared the pain. Finally – after 10 days things were working again. Wow – next time I know what is going to happen…and it will be done with anesthesia in the Daycare surgery room and NOT in the office.
Once that was all sorted out, we had to try to find a new caregiver. I held the job open for 3 months to see if May’s back would return to normal, but it didn’t. She still couldn’t move Donna, do her physio or take care of any of her chores, so I decided to let her go and find somebody new. The process didn’t take too long and we have now hired Elaine, who is an absolute dream! May did us a favor that’s for sure! Elaine is an RN from Ireland, who can’t practice in Canada, so she is now working with us! We couldn’t be happier.
So…that is the update for today. I have more, but I will save it for next post.











